Swan Song

This is my last post here. (It feels so surreal for me!) This blog has been an amazing journey for me, and now I'm ready to embark on some new adventures. Before I walk away from A Room with Books and Music, I have a few thoughts I want to leave with you:

Lupus (or any other life-changing diagnosis) is not the end of your life. It is the start of a different life. Live every moment you have left on this earth to the fullest. Whether they be few or many, make the most of every one.

Hard does not mean bad. A lot of beauty is forged in the crucible of hard. Find the beauty in the midst of hard days.

There are a lot of people that treat cynicism like a virtue. But cynicism is the easy path. Choosing to see good, potential, and possibilities takes a lot more creativity than cynicism. This is not ignorance. This is courageous living.

Drown out fear with the words of God and glimpses of who He is. (Insert link) He is peace in the midst of chaos, light in the midst of darkness, and strength in the midst of weakness. 

And finally,
to all of the people who have been part of this wonderful journey, 

to the people who took the time to read my blog, 

to the people who have encouraged me and told me what my words have meant to them, 

to the people who have made my voice louder by sharing my posts with others, 

and to the people who have lifted me up in their prayers...

Thank you.

Married to Someone with Lupus

I have lupus. My husband does not. Lupus affects both of us.

 I've mentioned my husband, Daniel, in my blog posts before. He has been an amazing pillar of strength for me. So for Lupus Awareness Month–and my penultimate A Room With Books and Music blog post—I thought I'd let him share his perspective on life with lupus.

How did you feel when you found out your wife has lupus?

At the time, as hard as it was hard to hear it, it was a relief to know that she wasn't imminently dying. We knew there would still be uncertainty as we moved forward from the diagnosis, but it was a trememndous sense of relief just to know what we were dealing with. It's hard to put into words how frightened and helpless we felt before we knew why she was so sick.

How does being married with someone with lupus affect your daily life?

It makes the impact of my decisions a lot more real. If I watch a movie instead of doing chores, it can derail her for a week. I have to be more intentional about when I work and when I relax, so that we can both really relax. It also means I can't make as many time commitments as I used to. Even if Esther isn't involved in the activity, it can be hard on her if I'm not around to help when she needs it, especially if she's having a flare up.

What has been your biggest challenge being married to someone with lupus?

I work full time and I'm pursuing a Masters degree part time. So balancing time between work, school, and home is definitely a challenge. I've had to really slow down the pace of my studies. And social activities with our friends are really kind of a luxury. We've both had a history of being over-involved with things, so we both had to learn how to dial it way down and help Esther conserve her "spoons."

What has helped you get through hard times?

Friends. Our faith community. People who have been there to encourage us and bring food to us and pray for us when we haven't even had the heart or strength to pray for ourselves anymore. I thank God for His people that He's surrounded us with. Our church family, my classmates and teachers, our coworkers, all of them have been amazing. I don't know how we would have made it through those first several months if it wasn't for them and their understanding.

I'm Not Used to This

The week that the doctor called to tell me I have lupus, I went back to work. Even though I could hardly move and barely had enough strength to stand, I refused to stop teaching. If I could get my hands over my head in the morning, I was going to work. (Looking back, the fact that this was my yard stick for whether or not I should go to work should have been reason enough to stay home.) I remember the day that I announced to my classes that I had lupus. Since the start of the semester, they had watched my hair fall out, my weight drop by over 20 pounds, and my body become more and more frail. They were so attentive in all the classes I had taught that year. I thought it was because I was a great teacher. But now I think it's because they were watching to make sure I didn't collapse in front of them. So when I finally had a diagnosis, I knew it would be better to tell them than to try to hide it. 

At the start of every class that day, I made the announcement. "I have lupus." The school where I was teaching at the time was a Bible college, a place where all the students were training to go into ministry. So I decided that I wanted to be an example for them. I remember telling them about how ministry is hard. Every single one of them will face challenges and obstacles. I spoke of character and endurance. I spoke of showing up in the hard times because people will need them to be there. I spoke of not giving up. And then I prayed for them, that God would strengthen their characters so they would be able to endure whatever their future may hold. And then I jumped right into my lecture.

I remember one class in particular that refused to let me leave it at that. A hand went up. "Um, can we pray for YOU?"  I remember them surrounding me to pray for me. It felt strange. I was so used to giving and pouring into them. I wasn't prepared for them to pour into me so beautifully. As much as I tried to hold it together and stay dignified, I cried as they prayed. When you pour yourself out for people, there are some that don't care. But there are also those who pour right back. I was loved. And those students were determined to make sure that I knew it.

Fast forward to today...

My life looks very different from how it looked over three and a half years ago when the doctor called me. But who I am hasn't changed. In the few years that I've had lupus, I have refused to stop investing in people. Whether it be at work, in ministry, in relationships, or even on my blog, I give what I can to help others. This month, my friend, Liz, decided that it was time that I was on the receiving end. During the month of May (Lupus Awareness Month), she's doing a fundraiser to help me with my medical expenses (an ongoing burden for me and my husband). She works for Keep Collective, a company that makes customizable jewelry. So she decided that she wanted to design a lupus awareness bracelet, sell as much of them as she can, and give me the commissions. When she told me she wanted to do this for me, I was shocked / surprised / humbled / slightly embarrassed / grateful / overwhelmed.  Like how I felt surrounded by students praying for me three and a half years ago, it feels strange. Even though I have found myself on the receiving end more now than before I had lupus, I'm still not used to it. And I've never been on the receiving end of something like this! 

I feel so loved.

It's really hard for me to ask for help. This is one of those advice-for-people-with-lupus things that I really struggle with. I abhor the thought of being a burden or inconveniencing anyone. What's more, I hate the thought of not being strong. Maybe you're like me. I get it. But you know what? Receiving help does not mean you are not strong. We are meant to help each other. And when someone who cares about you offers to do something for you, that is not a time to feel pitiful. That is a time to remember that you are not alone and you are loved. What a wonderful thing!

TBT

Stuff I could do before I had lupus:

Get out of bed without waiting for my joints to loosen up.

Skip breakfast.

Eat garlic AND walk the next morning.

Play with my long, flowing hair without worrying about it falling out.

Open a bottle of water by myself.

Work hard late into the night, sleep a little, do it again the next day.

Practice the piano all day like it's no big deal.

Play the cello (for even a few minutes) without experiencing intense pain.

Write and draw for hours without having to get cortisone shots in my hands afterwards.

Move painlessly after a day out in the sun.

Remember everything.

Hugs for everyone!

Stuff I took for granted before I had lupus:

The joy of being able to get out of bed on my own.
The strength to do a job that I love.
Science and easy access to medicine.
So many people in my life who shower me with love, prayer, and encouragement.
A husband that stands by my side through the good days and the bad.
 God's mercy truly is new every morning,
and He truly does strengthen me with joy.
Hope.
Music.
Good days.
Peace in the midst of the not so good days.
Every day.

Pictures of Lupus, Opus 7

I know that I've already posted a pic of my meds in this series, but the task of organizing these pills is such a recurrent drudgery that I thought it was worth looking at again from a different angle. I take 16-19 pills a day to manage lupus and its symptoms. But doing this mundane task well is so important to helping me live life to the fullest, invest into my students energetically, and make music passionately. There is much to thank God for in the midst of the drudgery!

Advocate

For the past few years, as I have tried to find my way along this journey of chronic illness, there is a word I have fallen in love with: advocate. Both a verb and a noun.

As I deal with the struggles of living with lupus, including dealing with insurance companies and hospital billing departments, amazing doctors and some not quite so amazing...

I have become passionate about being an advocate for others. Those who live with chronic illnesses need advocates so they can get the care they need. But if they are able, they shouldn't leave the job of advocacy completely in the hands of other people. They should be advocates for themselves.

I need to be my biggest advocate.

I need to...

- Be as informed about lupus as I possibly can...And this includes finding credible resources and not believing everything I read on the Internet.

- Tell my doctors everything they need to know—such as any new symptoms I'm experiencing—so they can provide the appropriate healthcare.

- Deal with difficult people who are part of the healthcare system that may or may not care about my situation. (I've even had some that have refused to believe I have lupus!)

Of course, we will still need the help of other people. We can't do it all on our own. But don't forget that your voice is important, too!

Pictures of Lupus, Opus 6

I got 2 cortisone injections in my hand today...again. It's easy to get frustrated when symptoms of lupus persist, but there are far better things—wonderfully beautiful things—to set my mind on. "We do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing us for an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen." {2 Corinthians 4:16-18}

Pictures of Lupus, Opus 5

Lupus causes my joints to swell and my fingers to get nodules. Not good for a pianist! I already had a custom splint for my temperamental finger, but when I am extra swollen, it doesn't fit. So I got a new one made last week. I love that they let me pick a color so my splint could be as fabulous as a splint could be.

Ten Looks at Christ

I recently started a new journey in my walk with God. I decided to get a Give Me Jesus journal from Life Lived Beautifully. (You can check it out the one I got here. There is also a men's/unisex version here.) The journal is designed to bring structure to your "quiet time" with God. I'm a very organized person, but when I spend time alone with God, I feel scattered. As much as I want to give God my focus, it is a struggle. So when I saw this journal, I was on board. The first few pages has introspective questions to fill out to and gives you some guidance for how to go about having a daily time with God. I've been a Christian since I was little and even went to Bible college, so I thought that filling out these questions would be a piece of cake. But they made me really evaluate where I am - where I truly am in my relationship with God. There was one page in particular that really struck me...

Based on a a saying by Robert McCheyne ("For every look at self, take ten looks at Christ!), this particular page gave a challenge:

"We must redirect our gaze to Jesus throughout the day. Take time to write down your 'ten looks' you will take at Jesus." 

When I read these words, I felt my breath stop for a moment. Write down the ten looks I will take at Jesus? I know the things He said, things He did, and how the Bible says to live. But do I know Jesus well enough that I can articulate ten things about Him that I can look at? Off the top of my head, I drew a blank. I was overwhelmed and at a loss. So I sat for a while in the realization that after so many years of living for God, I knew much about what He had done for me, but I did not know as much about HIM as I had thought. I began to flip through my Bible and look at passages that I had highlighted, searching for glimpses of Jesus...

1.  "...Then he rose and rebuked the winds and the sea, and there was a great calm...even the winds and the sea obey him..." (Matthew 8:26-27)

2. "...But take heart; I have overcome the world." (John 16:33)

3. "And the Word became flesh and dwelt among us, and we have seen his glory, glory as the only son from the Father, full of grace and truth." (John 1:14)

4. "But God shows his love for us in that while we were still sinners, Christ died for us." (Romans 5:8)

5. "He is the image of the invisible God..." (Colossians 1:15)

6. "And he is before all things, and in him all things hold together." (Colossians1:17)

7. "If then you have been raised with Christ, seek the things that are above, where Christ is, seated at the right hand of God." (Colossians 3:1)

8. "He is the radiance of the glory of God and the exact imprint of his nature, and he upholds the universe by the word of his power." (Hebrews 1:3)

9. "the founder and perfecter of our faith" (Hebrews 12:2)

10. Great and amazing are your deeds, O Lord God the Almighty! Just and true are your ways, O King of the nations!...You alone are holy..." (Revelation 15:3-4)

I keep this journal on my nightstand open to this page (with my phone far away, charging in the living room). So in the morning when my alarm clock goes off, before I have had time to dwell on the pain and stiffness that lupus brought my body through the night, before I start counting the items on my to-do list, and before social media has flooded my mind with so many useless and dramatic things, I grab this journal and take ten looks at Christ.

Pictures of Lupus, Op. 4

Sometimes I wear running shoes to work because I don't want the pain in my feet to distract me from what I need to accomplish that day. I'm not going to let lupus stop me from living my life!

-----

You can see more pictures of lupus here, here, and here.

Pictures of Lupus, Op. 3

Living with lupus means an abundance of prescription meds, supplements, and medicated creams. It is time consuming and expensive.

Pictures of Lupus, Op. 2

When you live with a chronic illness like lupus, pain is a constant battle. Finding ways to reduce that pain isn't always about comfort. It's about being able to function on a daily basis. So if something can help minimize that pain—and if it's legal, safe, affordable, and won't negatively react with my meds—I'm all for it. Bonus points for each thing that doesn't come in the form of pills or injections. For me, getting an adjustment from the chiropractor is one of those things. It's not that going to the chiropractor treats lupus, but at least it helps lessen the amount of pain I have to carry.

Pictures of Lupus, Op. 1

This is the start of a new series called, "Pictures of Lupus." It's an attempt to give insight to the question, "What is it like to have lupus?"

I took this pic when I was getting my first labs of the year done today. Every 3 months, I have to have labs done to monitor my health and to make sure I don't have drug toxicity from the medications I take.

What Doing Less Accomplished

At the start of the year, I made a commitment to do less to accomplish more. It was scary at first. A part of me was afraid that I was following a lie—that doing less would not accomplish more as I had hoped. An even bigger part of me felt like I was being lazy or unproductive. But I have learned that having space in my life and getting the rest I need can be one of the most productive things I can do for myself and the people I love. Intentionally creating space and having rest does indeed make room for greater things.

So what exactly did I accomplish by doing less this year? Here's a glimpse:

1. I've done the dishes and laundry. This may sound silly, but for so long I didn't have any strength at all to do some basic things. I was so depleted from work that I had no strength left in the evenings or weekends to do anything. My husband had to do these things for me 100% of the time (on top of working full time and grad school). He still helps me a lot, but the burden is no longer completely on his shoulders. This may not seem like that big of a deal, but being able to contribute to doing the dishes and laundry has given us space to do better things...

2. Instead of spending all of my free time lying down in bed or on the couch in exhaustion, I've been able to enjoy life with my husband. (It also helps that he isn't exhausted from doing everything in the house.) We've gone out, explored bookstores, played board games, and had meaningful conversations. (If you can't tell, we're both introverts.) We did more exciting things too...like going to Disney World (which is a pretty big accomplishment when you have lupus).

3. This past semester, I did NOT dismiss any of piano students early so I could go throw up. This is an actual accomplishment? Yes, it is. Lupus has a way of making sudden, unexpected appearances. But it's amazing what a difference resting and taking care of your body can have. My lupus is still active and I still experience fatigue and aches and pains—I had a total of 4 cortisone injections this past semester alone—but lupus hasn't kept me from being present to my students. I can honestly look back at this past semester and be proud of what I gave in every lesson. (If you're one of my students, I'm sure you have your own opinions of how each lesson went. Let's just celebrate the good stuff right now.)

4. I've done things with friends. I couldn't do this last year. (Again, I had no strength.) And not being able to cultivate relationships left me feeling lonely and emotionally drained. (Even the most introverted people need relationships.) But this year, I've gone out for coffee, lunch, and even the movies with friends! I'm not exactly a social butterfly now, but the fact that I had a social life at all this year is a huge victory for me. After all, it's not all or nothing. It's better to have a limited social life than none at all.

5. I performed my first full piano recital since my lupus diagnosis. When I finished my Master's degree, I imagined that performing recitals would be a yearly thing, but lupus put that dream on hold...indefinitely. I don't know if this is something I'll do every single year, but it's such a good feeling to know that performing as a soloist is back on the table. My music-making days are not over yet.

6. I've started dreaming again. There are so many things that got pushed aside when lupus came into the picture. But this year, old dreams have been revived and new dreams have been born. Steps are being taken. Parts are moving. Big things are in the works. (I realize I'm being vague, but some things need time to develop and take some shape before sharing with the rest of the world.)

Even though I didn't cross off every item on my 2015 list of goals (such as learning Latin or songs on the ukulele), I love what doing less allowed me to accomplish this year. So as I look forward to the coming year, what is my theme/goal/resolution going to be?

Reprise: Continue to do less to accomplish more. 

I know, after this past year, my new theme isn't very original. I don't care. It's not that I can't think of something better. And it's definitely not that I don't feel like I made enough progress in 2015. It's that I feel like I'm just getting started. Of course, I want new adventures. But I'm at a point in my life when, in order to find new adventures, I need to go deeper and farther. I'm not scratching items off a list. I'm growing, transforming, becoming. 

So bring it on, 2016. I'm ready for you!

My Favorite Moment

My first post-lupus-diagnosis piano recital was earlier this week. It was everything I wanted it to be. One person later told me, "You kicked lupus in the butt!" My arthritic fingers made the sounds and colors I wanted. My mind never stopped even when I felt lupus fog clouding my memory. And to add to the excitement, the room was full of such wonderful energy from people who weathered the rain to be there. In that one night, my heart became full with so many victories, sweet words, and memories I will cherish for a long time. But there is one moment from that night that stands out above all the rest.

Before the recital...

After I finished warming up, I had a few minutes before the doors to the recital hall opened for people to find their seats. I was alone in the hall. It was just me and God. I began to play some hymns. No thought of technique. No thought of memory work. No thought of what people may think or trying to impress anyone. Just worship. Pure, unfiltered worship. I was completely free. God has given me so much. I wouldn't be able to play the piano or perform if it wasn't for Him. It was only right that my first performance that night was for Him and Him alone.

 

Piano Recitals and Lupus

In a little over a month, I will be giving my first piano recital in three years. The last time I gave a recital was months before I was diagnosed with lupus. At the time, I had just earned my Master's in piano performance. The path to that achievement felt like a huge mountain climb, made even steeper by carpal tunnel syndrome and tendonitis in both my hands and wrists. I had no idea that I had a bigger mountain waiting for me right around the corner.

Days before my last "pre-lupus" recital, I wrote in my journal:

Sunday, July 8, 2012

     My shoulder keeps slipping out of place and the joints in my hand are swelling. I was planning on taking a break from the pain medications this summer, but instead I'm taking more pain pills than I've ever taken in my whole life just to function. I have some important performances coming up this month. It will take a miracle for my hands to endure the physical requirements of my pieces and make it through from start to finish. At any moment my hands could stop...I go into every performance with a strong awareness that it could be my last and it will happen only because God will make it happen.

After the recital, my health continued to grow worse:

Sunday, July 22, 2012
     My hands are still painfully swollen. I have pain in my feet, knees, shoulders, and neck....even with all the Mobic, Tylenol, anti-inflammatory cream, and Tiger Balm. It's been going on for about a month now. I'm starting to get worried. Could this be something serious? What is happening to me? Will my body ever have rest from all of these medical problems? I'm only thirty, but I feel like my body is falling apart and shutting down. Even though I know God is taking care of me, I'm still afraid.

I often hear people say, "God will never give you more than you can handle." When it comes to hard stuff in life, I think that's a load of crap. In the months that followed these journal entries, God definitely allowed me to go through way beyond what I could handle. Every morning, every night, I cried to God for mercy. I can't handle the pain! I have absolutely no strength left! I can't go through this one more day! I wasn't being dramatic. I was in too much pain to move. Playing the piano wasn't possible. I had lost over twenty pounds in less than two months. At least a third of my hair had fallen out. And without a diagnosis, there was nothing the doctors could do to help me. I had nothing in me left to keep going. And I was completely dependent on God to sustain me.

So a little over three years later, I'm doing a piano recital. (At this point, I'm tearing up as I type.) So yeah, I think this is pretty awesome. Even if I end up making a lot of mistakes and the performance doesn't sound anything like how I practiced - I really hope that's not the case and that it's amazing - I'm just so happy to be able to play and perform again. To be honest, I'm so glad God let me go through more than I could handle a few years ago. If He hadn't - if He would have let me have easy - I don't think I would experience the profound joy that I have when I play. I'm sure I still would have had joy, but not quite so profound. Music wouldn't be quite so precious and this performance wouldn't be so special. That's the beauty of hard things: They make the good things so much better. Oh, how I love how God shapes life's adventures!

To read more about my piano recital adventure, click here and here.

Remembering

This time of year makes me very contemplative. October 7 is my birthday and October 9 is the anniversary of when I got the call from the doctor telling me I have lupus. So October 8, 2012 is a sort of "dark day" in my memory. I remember the physical and emotional pain of not having the strength to get out of bed myself. I remember the questions in my head, wondering what was happening to me and asking myself, Am I dying? I remember the agony of waiting for the answers to come...wondering if they would ever come.

The past three years since my diagnosis have been a whirlwind of hard and wonderful. I am thankful for life - so much more thankful than I was before I had lupus. I'm thankful or my husband. For my work. For the people I love and the opportunities before me. For the ability to see God's handiwork a little more clearly. So much in my life means more to me. And the unimportant things mean so much less.

And so when it comes to anniversaries, they feel weightier to me. I can't just dismiss them. I need them so I don't forget. I don't want to forget what I've been through. Even all the horribly hard stuff. I want to remember it all....because it's all the hard stuff that makes the good stuff all the more sweeter. Life is so much harder with lupus, but I am so much happier because I feel the joy of every victory, every good day, every beautiful moment.

So today, on the anniversary of that day between my birthday and the call from the doctor that changed everything, I remember what it means to be truly alive and I thank God for another year.

If I Could Do It All Over Again

If I could do my post-diagnosis life all over again, there's one thing I would do differently. I would re-evaluate my work situation and make some changes. I don't think I would have given up my work at that point, but I would have chosen a different mindset. Instead of, "What can I do so that I could keep going at this crazy pace and work load?" I should have asked different questions:

Is this a healthy pace or work load even for a healthy person? (It wasn't.)

Does my work environment enable me to make healthy decisions or is it a hindrance? (It was definitely a hindrance.)

What things about my job are way beyond what I know my body can handle? Are those things that are worth the consequences or is the cost too high?

What is my physical condition at the end of my work day? (I was useless.)

Do I have energy for anything aside from work? (I didn't.)

What do I need at my work to ensure I can continue to work as long as possible?

How is this job affecting my quality of life in general?

If I could do it all over again, I would have been more intentional about educating the people over me in my work. (I tend to be much better with those who are below me.) I would have sat down with them, brainstormed solutions, and gotten things in writing.

If I could do it all over again, I would be less concerned with proving that I could still do it all and more concerned with doing what matters most.

Why I Hate Pregnancy Jokes

I am not pregnant.

I am sure.

But you've gained weight...But you've been throwing up...But it would explain some of your symptoms...But you have been married for a long time already...But I just think it would be really great if you were pregnant...

I am not pregnant.

Yes, my weight fluctuates as my health goes back and forth between good and bad seasons. Yes, I do throw up a lot as a response to pain. Yes, a lot of my symptoms look like pregnancy symptoms. Yes, I have been happily married for over a decade without ever getting pregnant. And yes, I think it would be really great if I got pregnant.

I am still not pregnant. I have never gotten pregnant, never miscarried. I simply have never conceived. And I want to scream want to cry hate it every single time someone jokingly asks or makes a joke about how I may be pregnant. I know they mean it in good fun, but for me, it's not funny. And the hurt that it causes is so disproportionate to the person's light-hearted intentions. At times, the pain is simply excruciating.

If you could feel the pain that I feel every year as Mother's Day approaches. If you could know the disappointment I feel as I am reminded each month that I am still not pregnant. If you could feel the longing I have when someone I have invested in tells me, "You would make a great mother." If you could see me fight tears as the doctors use words like, "very unlikely" and "not possible." If you could know the pain of telling your husband, "The last treatment didn't work."

Why have I never gotten pregnant? The simple answer is that I have endometriosis and lupus with Sjogren's syndrome in the mix. This combination is not very conducive to having a baby. This is the easiest answer to give when someone asks. But the real answer is, "I don't know." Pregnancy is not 100% outside of the realm of possibility even with my special combination of maladies. Miracles happen. I believe in miracles. I have prayed for this particular miracle. Many times. I am unwavering in my faith and trust in God. And I am still not pregnant. And I have no words that can sufficiently explain why.

I don't ask, "Why," because I don't need to be stuck in a question that leads to a dead end. I choose to live each day with an optimism that whether or not God chooses to bless me with children of my own, He still has amazing things in store for me.

But still...

There are times when I feel sad. I see something that reminds me. Or, something happens that brings up the hurt. Sometimes - like when Mother's Day is approaching - I know that it's coming. Sometimes those times come unexpectedly. And because I am - as many of my friends have told me - a joyful person, there's often no way for others to know if this is one of those times or not. And those light-hearted jokes just make it worse because it is not a light topic for me. It is unbearably heavy. And when something feels unbearably heavy, some jokes just pile onto the weight.

I have been very vocal about my journey with lupus ever since my diagnosis. But this is something I don't talk about freely for many reasons. It is an extremely emotional topic for many people in similar circumstances and I don't feel qualified to address it well. I have also had many situations in which I have told people that their joking about this is really hurtful only for them to be more persistent in their jokes. Not everyone understands what a difficult topic this can be. And it can be a deflating experience to try to explain these things to someone who doesn't understand. It is hard enough as it is. So like many, I choose to deal with it quietly.

So if I may, please allow me to make a bold request: Please consider your words before you jokingly ask me if I am pregnant or make light of the fact that I am not. (I know that there are cultures where it is considered a compliment to tell someone that they look pregnant, but I did not grow up in that kind of culture. And as much as I understand this kind of humor in my mind, my heart still fails to understand.) Maybe there is a day in the future when these kinds of jokes can make me laugh, but it's hard to imagine that. And I can assure you, this is not that day.

Do Hard Things

An entire month went by without a single piece added to my blog. So, what kept me too occupied to blog? I was practicing the piano. Yup. (You can get a peek into one of my practice sessions here.) I wanted to get in as much practicing as I could before my teaching schedule goes back into full swing at the university. And with all the hours of practicing, I finished memorizing my 235 backwards sections! It wasn't easy. At the end of each day, my mind was as sharp as mush, my hands were strong like Jello, and my SI joints were as cushy as knives. It was hard. And it was worth every minute.

I am able to do what I do because I don't let hard stop me. I just keep going, doing what I know needs to be done to achieve my goal. Even when I'm discouraged. Even when I'm struggling. Even when I feel like I hit a wall. Even when it's not the most exciting thing going on (or when it's more exciting than I prefer). Even when lupus adds limitations that make my impossible seem ridiculous. I would rather live a life that is hard than not truly live at all.

Do what it takes. Even if it's hard. Even if you have to go slow. Even if you get discouraged along the way. Even if the end seems so far...because this is the road that leads to great things.