I've had lupus for over two years. That's not that long. I've made a lot of changes in my life since my diagnosis. But if you look at my planner, aside from the multiple doctor appointments, you would have no idea that I have a chronic illness. On paper, I have lived a workaholic lifestyle. I looked ahead to these two weeks I have now and thought I could catch up in this time. I was wrong. Years of falling behind from pushing my body to the limit cannot be made up for in two weeks. This is my reality. So where do I go from here?
I will stop trying to live as though I don't have lupus. If I need more sleep, I will schedule time for sleep. If I get tired in the middle of a task, if I can put it down, I will put it down and rest. I will not let work be the reason I make unhealthy choices. If I allow my health to suffer, everything else in my life will suffer with it.
This is another day, O Lord. I know not what it will bring forth, but make me ready, Lord, for whatever it may be. If I am to stand up, help me to stand bravely. If I am to sit still, help me to sit quietly. If I am to lie low, help me to do it patiently. And if I am to do nothing, let me do it gallantly. Make these words more than words, and give me the Spirit of Jesus. Amen. -Morning Prayer for use by a Sick Person from The Book of Common Prayer
I will not be "all or nothing." I am a perfectionist and I finish what I start. Sounds responsible, right? Nope. When I don't have enough "spoons" I tend to operate in two modes: I typically push my body past its limit and attempt to borrow spoons until there are no spoons left in the foreseeable future. When this happens, I enter the mode where I look at tasks and don't even begin. (If you are unfamiliar with spoon theory, feel free to google it. I don't have enough spoons to explain it right now.) I am an all-or-nothing kind of person. But I don't want to be anymore. So what if I have just one spoon I can spare? What if that means I can start something but leave it undone? Maybe I don't have to complete a task in a day. Maybe I should give myself permission to take five days to clean all my kitchen counters. Maybe I should start living with the realization that something is better than all-or-nothing.
I will not pack my schedule to the limit so I can fill it with the things that matter most to me. I recognize that this means I
I will do less to accomplish more.
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